Monday, October 4, 2010

Digging out...

Hi everyone out there in bloggie land. Faith and I are still alive.......well...for the most part. We have had a really rough go of things for the last few months and my blog was one of the first things to fall to the wayside. Things have not been easy for us and I am still dealing with a LOT of bad stuff. These last few days I have finally begun to try to dig myself out and try to get my life back. Don't know how to do it just yet but I am praying to GOD to give me strength and wisdom to do the right things. Faith is doing ok, she is talking more and more. Last two weeks she learned to say NO and Uh Oh! It's a really big deal and of course, everything you ask her is ......"Noooooooo"! It's so cute! She has been going thru a big growth spurt and she is looking more and more like a young girl instead of a little girl. Losing that baby face. We had an epilepsy center appointment last week and her reports were all good and they said as long as she stayed seizure free like she has been she could go six months before our next trip! She also had another VCUG on her kidneys that revealed that she still has the grade two reflux...don't know what our dr will decide to do but there is a possibility of surgery to repair it. We will go at the end of the month to hear about what he wants to do. Please continue to keep us in your prayers.....we really need it. I am going to try to get back to blogging to relieve a little pressure.

Monday, August 9, 2010

We are still alive...

To all my dear friends out there...we are still alive! I am still dealing with some deeply personal challenges that are consuming a great deal of my time. I wish I could talk more freely but it is still very raw right now. I miss getting to read every one's blogs and continue to pray for all my dear friends and your children. I am sad to admit that I missed marking the anniversary of my blog, last month but it's just a date after all. Faith is doing OK, she is still full of smiles and joy every day. She is my bright light that keeps me going...Please continue to pray for me...strength and wisdom and God's protection.

Thursday, July 22, 2010

Please don't forget...

To all my friends out in blog land. Please don't forget to pray for our family. I am still here but my heart has not been able to pound out the words to fill a page. I am still struggling and am needing all the sincere prayers that I can get. Pray for wisdom and strength and God's merciful guidance and comfort. Thank you to my dear friends who have reached out to me with words of encouragement, you don't know how much it means to know that friends are out there.

Sunday, July 11, 2010

Prayers, please...

Forgive my absence, lately. Have been dealing with some serious personal issues and really struggling. If you all have some time to lift me up in your prayers please do. Having a really hard time, right now.

Saturday, July 3, 2010

Happy July 4th...What this "country" means to me...

I know I have said this before but I feel compelled, tonight, to wax poetically about our tiny town we live in. Our town is small...well...small isn't really the word. We don't have a stop light and only a couple of stop signs in the town limits. Let's just say, you could miss it if you blinked, it is also very rural. But our town has a host of "mis" conceptions attached to it. It is not "known" outside of the community as an accepting place but it is really a "mis" conception.

Tonight was our town's Independence Day Celebration. All the churches get out and set up tents and provide games, inflatables, food, drinks, snow cones, face painting...all for free! The street fills up around 5 or 6 with children, pets, families, strollers and everyone brings chairs to watch the fireworks at dark.



This year we took Faith, my sister and her oldest boy. The community is so close knit, everyone knows everyone. Even people I don't know...know me! Now this is the part that brings tears of joy down my face tonight, as I remember this magical evening. We decided to be brave and surprise everyone by bringing Faith's walker and let her walk the street. It was her first coming out party "walking" ever. Most of the people she knows have never seen her walk. She came tramping down the street and in moments we had a host of fans, followers and admirers trailing behind us...photographing, cheering her on, clapping for her!

Perfect strangers came up to talk to her and encourage her. This is a friend of ours who is mostly deaf who adores Faith and was kind enough to decorate Faith's cheek with...
"THE BEST TEAM IN THE COUNTRY'S" logo!
( Gamecocks Rule...that's for you, Carl!)

It is hard to explain to people who aren't from here or people who don't have special needs kids how isolated it can make you feel when you have a sick child. But this community.....
has welcomed her into it's fold.



This little girl is not a girl scout but she does know Faith through girl scouts. Ever since she met Faith she has gone out of her way to reach out to Faith. She is a rec cheerleader and every time I see her she comes running up to me and asks if I have decided to let Faith be a cheerleader this fall. She never misses a chance to ask me! She came running up to us and the first thing out of her mouth...."Can Faith be a cheerleader this fall? Have you decided?"
SO CUTE! She made Faith two bead bracelets and decorated her wheelchair with carefully chosen stickers.


This is my favorite shot of the evening. These girls LOVE her...really LOVE is not the word! When they saw her walking they were yelling and cheering and telling everyone! We saw lots of people we knew who had never seen her walk who were awestruck. We met about 15 new people from surrounding communities who had to come meet Faith and she charmed them all, blowing kisses, calling out to them as they passed by. When she got overheated and we needed a place to let her rest and get cooled down...women from the Methodist church gave up their spots in front of a fan to let her recover.
Her stamina was INCREDIBLE ....the longest she had ever walked. I would say maybe an hour! Up and down the street...up and down...waiving at her fans and marching along watching all the people. When she saw someone she knew she would say..."Awwwww" and point and head straight that way. Men, women, children, dogs all were fair game.
See what I mean...this lady we did not even know brought her puppy for Faith to see and the first thing she did was reach out and hug and kiss the puppy.


She was so happy and I could never begin to describe how my heart was swollen with PRIDE!


She didn't make it to the fireworks, Carl had to take her home but I got a mom's night out and stayed with my sister to watch them. They were beautiful but as I watched the evening grow dark and the lights grow dim...fireworks starting.... I turned to look at all the people lying in the grass, on the street....all gazing at the sky...I was thinking...MAN, forget the fireworks! Look at these amazing people! Look how they have accepted my daughter! What an amazing community we are so lucky to live in! Although it is TINY...it is full of heart and kindness! I have never been one to have attention drawn towards me but I tell you I walked straight down the middle of the street like the Queen of England, proud! It's so hard to explain without being here, being there to witness this tiny girl "OWNING" her community! I just don't have the words to describe it. Tears of happiness to know that she has a HOME in our town, she belongs, she is accepted, she is LOVED, she is encouraged, she is cherished. "
That is the what INDEPENDENCE means to me!






HAPPY INDEPENDENCE DAY, Y'ALL!

Friday, July 2, 2010

First month down...

Well, we are officially into our second month of homeschooling. I am not going to go into great detail because....well...we would be here all night! Faith has 21 days in so we are on track (we have to log 180 days by June 1, 2011). My goal is to have at least 40 by the time regular school starts which is Aug 16, so I think we are good. I have been doing a lot of trial and error things, trying to figure out the best way to present things to her. Of course, the simpler the better with her. I have been kind of making unit studies on the letter A with different A letter words each week...Apple, Alligator, Ants...you get the point. We will spend the week reading books about each object, watching some educational movies and working with the real things doing counting or exploration (except the alligator, you know!) We have been playing a game with each object where I cut out a paper version of the object with the letter A on it and color it then go around the house and hide it. Then I ask Faith to find it. She has so much fun with this game and has become pretty darn good at finding it even when I try to hide it well. When she finds it I say the objects name and the sound A makes, then ask her to say the sound. We often play it for an hour or more!
I figure if I can get her to be able to identify (by pointing) the first three letters of the alphabet by Christmas that's a reasonable goal. I have been learning a lot myself about time management. I have always been pretty good at it, actually prided myself on it as a manager for years! But this is a different ballgame...therapy, doctors, driving, researching and preparing lessons, caring for her, getting her fed, dressed and medicated, cleaning, making dinner, record keeping. Shew...is that all? I have learned that we will not be able to do our school year following a typical school year schedule there are just too many commitments (for Faith) that we can't give up. So I have learned to get up early and spend an hour or two first thing, then off to therapy then book it home and spend as much time as we can before dinner. The majority of Faith's education is still daily living and self help so we get to count therapy and also when we work on standing, eating and dressing...all that counts for parts of our school day.
So this is really just a recap of things we have both been learning in the last month. My real big issue is in SC we have to teach writing. Now Faith is just barely where she can hold a large crayon and scribble some marks on a page, so that is giving me a real fit. I know we have to start with the basics like lines and circles but she isn't even near that. I feel very unprepared...wait unsure how to do this right. I need to talk to our Association leader about what counts to see if working on her Ipad may count or what I need to do.
Faith seems to be enjoying most everything we do, mostly I think she thrives on focused attention by me...always has. She has passed 160 books in our first month and we are working on compiling a review of our A words in a "A book" with pages she colors of each of her topics.

Thursday, July 1, 2010

I NEVER thought I would see this day...

Well, OK I lie. I did think that I would see this day but it has been MANY years since I believed it would REALLY happen!

Today, Faith stood up on her own for the first time with ABSOLUTELY NO assistance! It really is a miracle after all these years it's so hard to hope for things that seem so unattainable! Since her first "getting to stand" with just a tiny bit of assistance she has had spurts of attempts again and again but them slacking off and not trying for days ( I think from fear after a few falls). After that day I felt sure it really WAS going to happen. This week she has been trying everyday after finally figuring out that she could hold on to the couch. She can consistently get her right leg into kneel now with very little effort.

Today, she was working for almost an hour, trying so hard over and over again. I was providing a little support on her left (weaker) side when she got up to keep her from losing her balance. I reached out and took my hands away just for a second to grab the camera and before I knew it....
She was UP! She wobbled and pitched and then leaned forward over the edge of the couch to catch her balance and stayed up! I couldn't believe it!
She only did it once but she kept trying....she just kept losing her balance and falling backwards. Once she fell backwards and missed the coffee table by about an inch and after a few tears she was right back up trying again. As of about 2pm today she can now get to kneel about 50% of the time without holding on!
My GIRL, I am so proud of you. Words are not enough to explain how much joy and surprise you bring to my heart! I love you the way you are but I love you more for your determination and persistence!

Wednesday, June 30, 2010

My new finds....

Took a trip to the Education Shack today, they were open all week with several new shipments.
I know this doesn't do it for everyone, but I was so excited! This place is a wonderland of boxes of all kinds of therapy and educational equipment and materials. Really they don't even know what they have or what it's for. I had two HUGE deals I found today...

We have been using these recorders in therapy with Faith for a while. They are little handheld recordable switches that fit perfectly in a child's hand. Our therapist suggested investing in one or two to use at home. At around $13 a piece, not bad for a primitive AAC device but I hadn't forked over the money for one. So while scrounging around in random boxes, today, I found one lying right in the bottom of the box! I was on cloud nine, so I asked a few employees if they had seen anymore and they said they had seen a few boxes of them but couldn't remember where. So we dug around and came up with 7! SCORE! I asked how much and the cashier says "I'll give them to you for $1 each." SOLD! Faith has been hauling them around all afternoon, I programmed one to say "Hi" and whenever someone would come thru the door at therapy she would press that button! She was so proud of herself.

My other cool find was this adapted walking sheep! We use adapted electronic toys with switches a lot with Faith and over the last few weeks her therapist loaned us a bubble machine with a small switch and a delayed response device. Got this little sheep that was already rigged to be plugged into a switch for $5! I had just brought home two books about sheep so we worked them together this evening while we read.
Found a few other steals...a bunch of Crayola washable markers in different color combinations for a $1 a pack, a 25# box of white sand for her sensory table- $5, a little plain apron to decorate while we work on letter A stuff-$1 and a decorate yourself pencil box-$1. I also saw a platform swing for $40, which I am told is a pretty sweet deal (soooo tempted) and they said they had a bunch of those canopy/bag swings at their other store for practically nothing!

I get a BIG rush finding good deals, so I walked around all day with a big smile on my face. I am so tempted to go back later this week when their new truck comes in. I think Carl would strangle me, though!

Tuesday, June 29, 2010

Beeeeeeees....

Last Thursday, Faith got to go to the library presentation on bees. A husband and wife who keep bees spoke to the children. There were only about 7 kids, this time, so it was not so distracting for Faith. They started off having the kids pretend to be bees. They sprinkled dried chick peas on the floor and the kids were supposed to pick them up (like pollen) and work the bee hive to make honey. Faith had a lot of fun, I picked them up but let her carry them to the bowl, then she got to stir the bowl. Finally the kids got to taste some of the honey on spoons. Faith had never tasted honey and she really liked it!

The couple showed the various equipment and tools used in bee keeping and had some of the kids model the protective gear. They also brought a small hive to show, Faith was particularly interested in the bees, themselves. She liked the buzzing noise they made and sat very still listening. While we were there we met a little boy who was in self contained class at the local elementary school. He was very shy but eventually warmed up to Faith because she kept trying to get his attention going...."Heh....Heh...Heh!" and waving her hand at him. It was so cute! My little social butterfly!
One really cool new thing she did was when the man asked some questions for the kids to answer...they all raised their hands and after a few times Faith did it too! She was doing just like the kids....leaning forward with her hand outstretched like..."Pick me, Pick me!"

On our way out we checked out some more books...she's now up to 140 books for the month of June! Pretty proud of her....(even if I do all the reading! LOL!) Really I am just kidding...I love reading to her and she is so interested in all books!

Saturday, June 26, 2010

Parent perspective....

As a stay at home mom of a EXTRA special little girl, I know that my perspective of things is a lot different than my hubby's. He has a job that he goes to everyday, friends he works with, people he deals with. Much like "normal" people. I, on the other hand, spend 99.9% of my life with a six year old little girl who can barely talk and understands only simple things in life. My concerns are...is she safe, is she happy, am I setting a good example for her, am I leading her on the right path, am I providing her with the right stimulation/learning experiences, did I spend enough time stretching her. Not the things that most people worry about.
My life is consumed...but I am NOT complaining. It's my responsibility! I am OK with it.
But for Carl it's different. He sees himself as other things besides the dad of a special needs child. He still wants to go do things that we used to do before she was born. Hiking, camping, overnights at the beach, swimming at the lake until late at night.
It's hard for him to NOT be able to go do those things. He is a GOOD sport, believe me, but sometimes I can see him wearing down under the monotony of our days.
I do miss those things, but I don't ache to do them like he does. So this weekend, he has gone camping with his best friend from school and his little boy. They are planning to do some fishing, something that Carl really misses.
I am happy that he is getting out and having carefree fun...but I miss him and worry about all kinds of potential problems. I hope this gives him a little boost and gets him refreshed to come back to life.

Wednesday, June 23, 2010

Tie Dye Fun...

Last Thursday, our local library had Tie Dye Day. The kids were invited to bring a t shirt or something white that they could dye....er....destroy!
Faith took a pillow case to color. First they made book marks out of foam stickers and glue...Faith was all about the glue and made a BIG mess all over her wheelchair and lap! I purposely dressed her in clothes that wouldn't be destroyed by dye but wasn't prepared for a glue war. She chose pink and teal to use and we were very conservative with the colors. Some of the other kids made a HUGE mess that dripped down onto the floor where the plastic had been moved under the table by all the kid feet. I felt so bad for the poor librarian. When we got home I put out the pillow case on the back porch to dry and it was totally dry in one hour! That's how hot it is here! Faith dragged her artwork all over the house for the rest of the night, she was so proud of it. This Thursday a bee keeper is bringing some of his bees and doing a presentation. Hey, I can't complain about the library doing some of my homeschooling work for me, can I?
?

Monday, June 21, 2010

Not enough hours in the week...

Since we started homeschooling with Faith at the beginning of the month, I have had so little time to sit down and blog. I have been trying to keep up with everyone out in bloggie land but that's about all I can do, lately! I have been going from about 7 am til around 9 or 10 at night. Good news is we have 14 days under our belt, now. My goal is to have at least 40 days by the time public schools go back to school, so I can keep ahead. Faith is having lots of fun with "school" although it's just an amped up version of what we have done for years. We have spent HOURS reading. HOURS, people! Like over an hour almost every day! We have already read 115 books since the first of the month! I think we have logged about 10 hours of reading time since two Fridays ago. I have found out that my evenings are now my only time to get all the housework done. Well, at least most of the housework done! HE HE HE! If anyone has some extra prayer space could you remember me and pray for strength and fortitude?

Monday, June 14, 2010

Things I can't live without...


video

Here are some of my new favorite gadgets that we can't live without, here in our house. Don't know how we ever lived without them. This was my greatest new find at the Education Shack that I talked about a few weeks ago. An activity table for water, sand, beans and the like. I always wished for something like this for Faith but they are ridiculously expensive! Found this, last Saturday, for.... $20, people! I was soooo stoked! She has been spending hours playing at this thing. It is the perfect height for her to stand on her knees and she will stay there forever. We have been putting little people animals in there and when she picks them up we say what they are. This is her favorite new toy and it's so cute to see her go into her playroom and stand there going "peeeeeeeese" for me to bring it into the kitchen and put water in it. Freakin' darling! I looked it up on the computer and the cheapest place I found it was $80! Score!

Her other new piece of wonderful-ness is her activity chair. Here in SC we have an organization called Family Connections that pairs parents of special needs kids together with other parents of similar kids. They keep a loaner closet (house) that parents can come and borrow/use equipment that people have outgrown/donated. It's a wonderland of old, new, crazy equipment from the last 20 years! I have been on a hunt for a chair with a tray that we could use for h.s.ing but no luck for two months. So I put in a call and went over a week ago, they said they didn't think they had anything that Faith could fit into but we went into the building outside and right there in the front was this perfect activity chair! It fits her perfect and she LOVES it, asking daily to get into it. I love it because it's adjustable, has a tray, an abductor pad and a seat belt. It was exactly what I was wanting. And I get to keep it as long as she needs it! Who could ask for anything better?

This last one is the wonderful gift from our new friends, T and his momma. (Don't ya love our cat, thinkin' she can get a ride?) This is called a Kaye wagon walker and it is the apple of Faith's eye! I know it's as old as the hills but it's in perfect shape. She had been using one of those baby push walkers to get around at home but it was way too small for her. This bad boy is made for bigger kids and adjusts! The family who gave it to us had replaced the front wheels with casters for easier turning and when we got it we moved the hand bar back because she was getting stuck in the middle. I have had my toes run over so many times, I think they are all broken! She loves the basket in the front and gives all her precious belongings...babies, books, hello kitties, bottles even her baby cousin the other night...rides everyday!

The girl likes PICKLES!


video


It all started with lunch, last week with Faith's PT. We had sandwiches that came with a pickle spear. I didn't have anything for Faith to eat so I offered her the spear, just to see what she would do. SHE LOVED IT! She ate both mine and her PT's! So this weekend I went out and got her own jar of whole baby pickles, thinking she could hold them easier. She has eaten pickles every night since! It cracks me up because I HATE pickles...hate them...hate the smell...everything about them! BUT she loves them! Tonight she had three, biting them all the way to the end. She isn't swallowing the pickle itself, she spits it out but she is swallowing juice. I have seen her swallowing. It is such a big step in the right direction...chewing and biting....things I never thought I would see her do. It seems like she responds better to things with very strong flavors...spicy foods, pickles, peppery foods, sour candies. Stuff I could never eat until I was an adult. Some of her therapists and specialists who have treated her said that kids like Faith often do better with strong tasting foods...something about it triggering a bigger reaction or something. Who knows...who cares? I think Vlasik needs to star Faith in their next commercial...with a crunch like that she could sell some pickles, I bet!

Saturday, June 12, 2010

Lunch...

Wednesday, we had lunch with our beloved PT, at the bakery/deli that Carl recommended. We both had sandwiches that were good (but crazy ridiculously expensive). After lunch, she invited us over to her house, which turns out, was just half a mile down the road! She is awesome, have I mentioned that before? She took Faith outside and jumped her on the trampoline, let her drag all her kid's toys out of their toy bins, and generally get into trouble all around her house. She followed Faith around on her hands and knees almost the whole time! When it was time to go to therapy she asked if we would like to come back after therapy and play with her kids. So we did! It was lots of fun, the kids were so good to Faith. They shared their toys, read her stories and even diligently wiped her mouth when she drooled! They were just as attentive as their wonderful momma, they come by it honest. And they are such good kids!
I felt a little awkward because I didn't want her to feel like she was doing therapy for Faith when we just came over to spend time with her. I felt like we didn't get to sit down and chat much, but I did have a great time. I asked her about coming up to the house and she said she would love to and didn't mind the long drive. So if I can get my house cleaned up I think we will try to get them up to the house. It was a good time for all of us. I really hope that we can spend some more time with her and her family.


Thursday, June 10, 2010

Reptiles....

On Monday, we got to go to the Reptile show in our town. I was excited to take Faith to let her get up close to some unusual animals. I grew up with all kinds of critters like these so NO we aren't scared of snakes, here, in the Hudson house. When we came into the building, the gentleman who was doing the show came right up to Faith and started talking to her. Turns out he retired several years ago from our local residential facility for adults with disabilities, where Faith goes for one of her therapies! He worked there for 27 years! He put us right up in the front row so Faith could see all the animals!

He was so nice and when he started bringing some of his animals around for the kids to touch, every single time he started right with Faith! The first animal he brought her was a huge iguana that he put right in her lap! She was totally excited! Then he brought her a python...
Faith was very interested but she had a hard time sitting still during the times he was talking, she got bored, so I had to do a lot to get her attention.
Then he brought her a HUGE albino python and she tried to grab a big chunk out of the poor snake!
And finally she got to touch an American alligator, which she really liked!


We both had a lot of fun, I could have listened to him speak all day. We got to see about 20 different species of snakes, turtles, alligators and other reptiles. It turns out that this gentleman was retiring from his rescue/business this week, it was one of his last shows. And all these things fell into place that we went to the library at that day at that time and just before the show started, then to meet this man, days before retiring who worked with special needs people for years! It was a perfect day with Faith standing, getting her library card and this wonderful man!

Tuesday, June 8, 2010

Another childhood milestone...

Yesterday, was a wonderful day in more ways than one. After all the excitement of therapies, we headed to the library to get Faith her first library card!

Our library is tiny, I mean really tiny, like about 5 rows including the side walls! The librarian was so nice she gave us the paperwork to fill out and once it was done I let Faith hand it to her.

And here we are, Faith's first library card! All grown up, she is! She chose four books about horses, a book about guide dogs and three videos about horses and zoo animals.

While we were checking out when the librarian told us that they were having a reptile exhibit show in the community building, next door. So off we went to check it out...
More on that tomorrow.
Faith was so proud of her books in her little book bag, she carried it out to the car (see, Dr. Boucher, we remember what you said about carrying stuff!). Of course, five books doesn't go very far in this house. I started keeping a log of all the books we read and in 5 days there were thirty books! So we read all of them last night, LOL, I guess we will be visiting pretty often!

Monday, June 7, 2010

Some unbelievable news and 200....

OK my lovely friends out there in bloggie land! I am pretty sure I have some lurkers out there and after this post I sure hope that you will take some time to leave me a comment! First off, today is my two hundredth post, and I am exactly one month away from an anniversary of my blog. I know, I know, sooooo exciting!
Here is the big news! Drum rolls, please...
dum, dum, dum, dum, dum...
TODAY, FAITH STOOD UP!
YES, FOLKS, SHE STOOD UP!
She has been able to stand if someone put her into stand in her walker or held her up but she has never been able dissociate her legs, lift a leg into kneel and then stand up!
TODAY SHE DID...
with a little assistance in the form of a chair and a therapist to help her keep her balance. BUT, she did all the work! After six and a half years, I had almost resigned that she would never gain that skill, that we would always have to put her in those positions.
But once again, she proved me wrong!


It all started with her OT, trying to introduce some simple yoga moves and for some weird reason she seemed to pick right up on them, attempting about six moves! So she went with it and pulled out her yoga book. Her OT was performing the moves then saying "Faith do it" and she would try. So eventually, it came to a chair and a kneeling position. So D. did it and when it came to Faith's turn she sat on the chair to keep it upright and low and behold...
SHE DID IT, but she kept going into a stand!
(These pics are the actual first time standing for Faith, some aren't so good but I had to show you all anyway!)

Needless to say, we danced, we screamed, we cried, we acted like a bunch of fools as we celebrated a HUGE milestone that was a LONG time coming!

So, then she decided to get smart with us and attempt it using the tripod leg!
Little Miss Smarty Pants did it, with D. supporting her!




I felt like the Heavens were opening up and a chorus of angels were descending on our little therapy room! She did it, folks!


Today was a wonderful day for many reasons besides this amazing new skill but it would take me all night to write about it! Another post, another day.


Upon arrival at home, after a long day out, she went scooting over to her little wagon walker and I saw her trying to lift her leg up to a kneel position. She got to it a few times but both times she lost her balance and fell over but she wasn't about to stop! So she came walking on her knees over to me and lifted her leg, I slowly put out one finger to offer her some support and she reached out...
took my finger and
STOOD UP!
I almost fainted right on the spot! She did it three more times before she got too tired and started whining like she was in some pain. So we stopped. I tell you, friends, there was no momma more happy or proud or amazed or joyous than me, today! Six years, people, we waited for this! SIX YEARS! Oh and one more small miracle, she crawled reciprocally today in therapy too, for the first time! She always has bunny hopped, but today, she was rockin' it and decided to start moving her legs and hands in the proper fashion! She was so proud of herself, re doing it over and over again to practice! Just when I try to accept how things are for her, she always knocks my socks off! What a day for a two hundred post! I will be posting a few more awesome things that happened today, in the next few days. Lots of good stuff!
Off to dance myself to bed and dream sweet dreams of my girl, running through a field of wildflowers!


Thursday, June 3, 2010

Hummus, anyone?????

Here is my lovely girl enjoying some of our "hard, homeschool work" with self feeding! One of our major goals for her, of course, is to eat by mouth as much as possible. So today, after a trip to the store and a big jar of hummus, she sat in her (new to us) activity chair while I did dishes and laughed and spilled stuff and made a big mess! She used her NUK brush to dip it and then her fingers/fists to smear it all over her face and hair! She figured out if she made a big to do about putting it in her mouth I would dance around the kitchen like an idiot! So I snagged lots of good pictures of her laughing at my stupidity.
Who knew Hummus could be so much fun? She sat there for a good hour and a half without complaint and enjoyed a little of the exotic....