Sunday, July 11, 2010
Prayers, please...
Posted by Candace at 5:25 PM 19 comments
Labels: parenting special needs kids
Saturday, July 3, 2010
Happy July 4th...What this "country" means to me...
Tonight was our town's Independence Day Celebration. All the churches get out and set up tents and provide games, inflatables, food, drinks, snow cones, face painting...all for free! The street fills up around 5 or 6 with children, pets, families, strollers and everyone brings chairs to watch the fireworks at dark.
"THE BEST TEAM IN THE COUNTRY'S" logo!
( Gamecocks Rule...that's for you, Carl!)
has welcomed her into it's fold.
SO CUTE! She made Faith two bead bracelets and decorated her wheelchair with carefully chosen stickers.
She was so happy and I could never begin to describe how my heart was swollen with PRIDE!
That is the what INDEPENDENCE means to me!
HAPPY INDEPENDENCE DAY, Y'ALL!
Posted by Candace at 10:59 PM 13 comments
Labels: Faith, July 4th, parenting special needs kids
Thursday, July 1, 2010
I NEVER thought I would see this day...
She only did it once but she kept trying....she just kept losing her balance and falling backwards. Once she fell backwards and missed the coffee table by about an inch and after a few tears she was right back up trying again. As of about 2pm today she can now get to kneel about 50% of the time without holding on!
My GIRL, I am so proud of you. Words are not enough to explain how much joy and surprise you bring to my heart! I love you the way you are but I love you more for your determination and persistence!
Posted by Candace at 4:30 PM 12 comments
Labels: Faith, parenting special needs kids, standing
Wednesday, June 30, 2010
My new finds....
I know this doesn't do it for everyone, but I was so excited! This place is a wonderland of boxes of all kinds of therapy and educational equipment and materials. Really they don't even know what they have or what it's for. I had two HUGE deals I found today...
We have been using these recorders in therapy with Faith for a while. They are little handheld recordable switches that fit perfectly in a child's hand. Our therapist suggested investing in one or two to use at home. At around $13 a piece, not bad for a primitive AAC device but I hadn't forked over the money for one. So while scrounging around in random boxes, today, I found one lying right in the bottom of the box! I was on cloud nine, so I asked a few employees if they had seen anymore and they said they had seen a few boxes of them but couldn't remember where. So we dug around and came up with 7! SCORE! I asked how much and the cashier says "I'll give them to you for $1 each." SOLD! Faith has been hauling them around all afternoon, I programmed one to say "Hi" and whenever someone would come thru the door at therapy she would press that button! She was so proud of herself.
My other cool find was this adapted walking sheep! We use adapted electronic toys with switches a lot with Faith and over the last few weeks her therapist loaned us a bubble machine with a small switch and a delayed response device. Got this little sheep that was already rigged to be plugged into a switch for $5! I had just brought home two books about sheep so we worked them together this evening while we read.
Found a few other steals...a bunch of Crayola washable markers in different color combinations for a $1 a pack, a 25# box of white sand for her sensory table- $5, a little plain apron to decorate while we work on letter A stuff-$1 and a decorate yourself pencil box-$1. I also saw a platform swing for $40, which I am told is a pretty sweet deal (soooo tempted) and they said they had a bunch of those canopy/bag swings at their other store for practically nothing!
I get a BIG rush finding good deals, so I walked around all day with a big smile on my face. I am so tempted to go back later this week when their new truck comes in. I think Carl would strangle me, though!
Posted by Candace at 10:17 PM 7 comments
Labels: cheap shopping, Faith, parenting special needs kids
Tuesday, June 29, 2010
Beeeeeeees....
Posted by Candace at 2:46 PM 5 comments
Labels: bees, Faith, parenting special needs kids
Saturday, June 26, 2010
Parent perspective....
My life is consumed...but I am NOT complaining. It's my responsibility! I am OK with it.
But for Carl it's different. He sees himself as other things besides the dad of a special needs child. He still wants to go do things that we used to do before she was born. Hiking, camping, overnights at the beach, swimming at the lake until late at night.
It's hard for him to NOT be able to go do those things. He is a GOOD sport, believe me, but sometimes I can see him wearing down under the monotony of our days.
Posted by Candace at 8:41 PM 9 comments
Labels: Faith, parenting special needs kids
Monday, June 21, 2010
Not enough hours in the week...
Posted by Candace at 5:21 PM 5 comments
Labels: Faith, homeschooling, parenting special needs kids
Monday, June 14, 2010
Things I can't live without...
Here are some of my new favorite gadgets that we can't live without, here in our house. Don't know how we ever lived without them. This was my greatest new find at the Education Shack that I talked about a few weeks ago. An activity table for water, sand, beans and the like. I always wished for something like this for Faith but they are ridiculously expensive! Found this, last Saturday, for.... $20, people! I was soooo stoked! She has been spending hours playing at this thing. It is the perfect height for her to stand on her knees and she will stay there forever. We have been putting little people animals in there and when she picks them up we say what they are. This is her favorite new toy and it's so cute to see her go into her playroom and stand there going "peeeeeeeese" for me to bring it into the kitchen and put water in it. Freakin' darling! I looked it up on the computer and the cheapest place I found it was $80! Score!
This last one is the wonderful gift from our new friends, T and his momma. (Don't ya love our cat, thinkin' she can get a ride?) This is called a Kaye wagon walker and it is the apple of Faith's eye! I know it's as old as the hills but it's in perfect shape. She had been using one of those baby push walkers to get around at home but it was way too small for her. This bad boy is made for bigger kids and adjusts! The family who gave it to us had replaced the front wheels with casters for easier turning and when we got it we moved the hand bar back because she was getting stuck in the middle. I have had my toes run over so many times, I think they are all broken! She loves the basket in the front and gives all her precious belongings...babies, books, hello kitties, bottles even her baby cousin the other night...rides everyday!
Posted by Candace at 8:19 PM 8 comments
Labels: adaptive equipment, Faith, parenting special needs kids
Saturday, June 12, 2010
Lunch...
I felt a little awkward because I didn't want her to feel like she was doing therapy for Faith when we just came over to spend time with her. I felt like we didn't get to sit down and chat much, but I did have a great time. I asked her about coming up to the house and she said she would love to and didn't mind the long drive. So if I can get my house cleaned up I think we will try to get them up to the house. It was a good time for all of us. I really hope that we can spend some more time with her and her family.
Posted by Candace at 9:54 PM 6 comments
Labels: Faith, parenting special needs kids, therapy
Thursday, June 10, 2010
Reptiles....
He was so nice and when he started bringing some of his animals around for the kids to touch, every single time he started right with Faith! The first animal he brought her was a huge iguana that he put right in her lap! She was totally excited! Then he brought her a python...
We both had a lot of fun, I could have listened to him speak all day. We got to see about 20 different species of snakes, turtles, alligators and other reptiles. It turns out that this gentleman was retiring from his rescue/business this week, it was one of his last shows. And all these things fell into place that we went to the library at that day at that time and just before the show started, then to meet this man, days before retiring who worked with special needs people for years! It was a perfect day with Faith standing, getting her library card and this wonderful man!
Posted by Candace at 11:05 PM 6 comments
Labels: Faith, parenting special needs kids
Tuesday, June 8, 2010
Another childhood milestone...
Our library is tiny, I mean really tiny, like about 5 rows including the side walls! The librarian was so nice she gave us the paperwork to fill out and once it was done I let Faith hand it to her.
And here we are, Faith's first library card! All grown up, she is! She chose four books about horses, a book about guide dogs and three videos about horses and zoo animals.
While we were checking out when the librarian told us that they were having a reptile exhibit show in the community building, next door. So off we went to check it out...
More on that tomorrow.
Faith was so proud of her books in her little book bag, she carried it out to the car (see, Dr. Boucher, we remember what you said about carrying stuff!). Of course, five books doesn't go very far in this house. I started keeping a log of all the books we read and in 5 days there were thirty books! So we read all of them last night, LOL, I guess we will be visiting pretty often!
Posted by Candace at 2:29 PM 6 comments
Labels: Faith, library, parenting special needs kids
Monday, June 7, 2010
Some unbelievable news and 200....
Here is the big news! Drum rolls, please...
YES, FOLKS, SHE STOOD UP!
TODAY SHE DID...
with a little assistance in the form of a chair and a therapist to help her keep her balance. BUT, she did all the work! After six and a half years, I had almost resigned that she would never gain that skill, that we would always have to put her in those positions.
But once again, she proved me wrong!
It all started with her OT, trying to introduce some simple yoga moves and for some weird reason she seemed to pick right up on them, attempting about six moves! So she went with it and pulled out her yoga book. Her OT was performing the moves then saying "Faith do it" and she would try. So eventually, it came to a chair and a kneeling position. So D. did it and when it came to Faith's turn she sat on the chair to keep it upright and low and behold...
SHE DID IT, but she kept going into a stand!
(These pics are the actual first time standing for Faith, some aren't so good but I had to show you all anyway!)
Needless to say, we danced, we screamed, we cried, we acted like a bunch of fools as we celebrated a HUGE milestone that was a LONG time coming! So, then she decided to get smart with us and attempt it using the tripod leg!
Little Miss Smarty Pants did it, with D. supporting her!
Today was a wonderful day for many reasons besides this amazing new skill but it would take me all night to write about it! Another post, another day.
Upon arrival at home, after a long day out, she went scooting over to her little wagon walker and I saw her trying to lift her leg up to a kneel position. She got to it a few times but both times she lost her balance and fell over but she wasn't about to stop! So she came walking on her knees over to me and lifted her leg, I slowly put out one finger to offer her some support and she reached out...
took my finger and STOOD UP!
I almost fainted right on the spot! She did it three more times before she got too tired and started whining like she was in some pain. So we stopped. I tell you, friends, there was no momma more happy or proud or amazed or joyous than me, today! Six years, people, we waited for this! SIX YEARS! Oh and one more small miracle, she crawled reciprocally today in therapy too, for the first time! She always has bunny hopped, but today, she was rockin' it and decided to start moving her legs and hands in the proper fashion! She was so proud of herself, re doing it over and over again to practice! Just when I try to accept how things are for her, she always knocks my socks off! What a day for a two hundred post! I will be posting a few more awesome things that happened today, in the next few days. Lots of good stuff!
Off to dance myself to bed and dream sweet dreams of my girl, running through a field of wildflowers!
Posted by Candace at 10:04 PM 21 comments
Labels: Faith, parenting special needs kids, standing, therapy
Wednesday, June 2, 2010
Six months post-op....
Of course, after all our concerns and worry and all the effort our PT went to to send a letter... Faith did almost none of those things while we were there! Actually, she made a BIG FAT LIAR out of me! When they asked me to put her in her walker, she walked out into the hall and proceeded to walk up and down the hall for over half an hour...until the doctor finally came to see us! She had never walked that far or that long...EVER! I stopped briefly to chat with a nurse we knew and in about 30 seconds, she had made it to the double doors at the end of the hall about 50 feet away! She walked straight without pulling to one side and she did not do her soldier march that she usually does! I know, I know, A LIAR!
All in all, they seems thrilled and very happy with her progress. They gave us the go ahead to take her braces off at night as well as her knee immobilizers and to take them off during therapy! WOOOOPEEEEE! As well as taking them off when she is playing in the floor. They said she needs to stay in them about 80% of the time now...(although, I can't figure out how keeping them off for therapy, play on the floor and sleep equals anything less than 80%) but I guess we will figure it out! We went to therapy afterwards and started right away with working with no braces. They told me today that the next six months need to be muscle building time. And you can tell she needs it when those braces come off. She is soooo weak.
FYI: for those of you who gave me all the good advice about inviting our PT over, I made a preliminary move and invited her to lunch, next week. She seemed really excited and asked how early we should meet so we would have time to talk before we went to therapy! LOL! So we are going to a local dessert/sandwich deli that Carl says is really good. Can't wait! She is so wonderful! She got lots of compliments from the folks at Shriners for her dedication and commitment to Faith! WHOOOOOO, E, we sure do love you!
Posted by Candace at 8:56 PM 5 comments
Labels: Faith, parenting special needs kids, shriner's
Monday, May 31, 2010
School....
One cartridge of my kind of printer ink in magenta...(I just saw this at Staples for $20) my price
$1.00! And it's not expired!~
Record book with attendance and other needed items, I plan to disassemble this and use different pieces of it ( saw a newer version of this at the education store, around $10.00) my price $1.00!
Thought about you, Katy, with this one! A dirt worm cup dessert kit (made with pudding and gummies) my price $3.00! This one is going into my first science set, exploring plants, that goes hand in hand with my next find of the millennium!
Found this science curriculum kit for K-2cd grade, with hands on materials like seeds and cups for growing, teacher resource book, flip chart with diagrams an d charts of plants and animals in pretty simple terms, beans to soak in water, journals, soil and the like. I know Faith isn't ready for a lot of this stuff but she would like to plant some flowers in some dirt! So I spotted this kit in the window and asked about it. It was the only one, no price on it and the box was a little sun worn from sitting in the window. I asked the girl how much and she says..."how much do you want to pay for it?" Hmmmm...I was gonna go for a cheap toss out of $15 but since she asked...."How about $8?" SOLD! Yes folks, I snagged this $75 science kit for eight dollars! I checked it out on Amazon just out of curiosity! I walked out of the store with two walmart bags and this kit for $20! Got tape dispensers, highlighters, huge flip books, ink, planners, paint, misc. office supplies, pudding kit...all for a measly $20!
My home school planner is pretty much all set up and ready to go, and we can officially begin on June 1st. My plan is to try to get a jump by starting early so we can be sure to get our 180 days in. I found out that we can count a lot of Faith's activities toward our days, so I am happy about that. Of course, a lot of our work is going to continue to be on life skills but I want to get her out into her community more. So I plan to start out next week at the library and get her own library card. Big step, huh? I called the library the other day to ask how old a child had to be to get one (stupid question, BTW) and was informed that we could get one for a newborn, that kid's just link back to a parent's card! But another important milestone, none the less!
So here we are on the cusp of a huge new experience for Faith and for me. As of tomorrow, our little girl is in first grade! WOW....
Freaky!
HERE WE GO....
Posted by Candace at 8:54 PM 7 comments
Labels: Faith, homeschooling, parenting special needs kids
Graduation.....
They were supposed to walk over the bridge so her friend just improvised
Faith's bridging certificate...
Here is her little uniform and all the patches she earned, this year! Pretty impressive, huh? The patches on the left are going on her Brownie uniform, as they have been working on these just recently. She already has NINE for it!
Posted by Candace at 7:42 AM 9 comments
Labels: Faith, Girl Scouts, parenting special needs kids






