Wednesday, September 2, 2009


I am posting a link to Katy from Bird On The Street's blog, she compiled this great list for being a parent of a special needs child and it is SOOOOOOO GOOD! Go check it out, if you haven't already!

Faith had an eye doctor appointment, today. It was her first with this new doctor from Emory. A woman, but as with most eye doctors, kind of weird, don't talk much and bad bedside manner. Anyway, Faith was put in glasses when she was 9 months old, they said she had farsightedness, strabismus and ambliopia. But she never tolerated the glasses. She lost almost every pair she ever got! Everytime we would go they would say her prescription was off. I don't know how they can tell specifically with small babies but it was never right! So for a while we just stopped going b/c we were frustrated and couldn't get anywhere. So we met this new dr, today, and she said that Faith didn't need glasses. She still has the strabismus and ambliopia but her vision, itself, was w/i normal limits. So she said that she wanted to review all her major med. records primarly dealing with her brain tumor (on the optic pathway) and her neuro. status before she made an official finding. But she thought that Faith would benefit from surgery to correct those two problems. So we go back in 3 wks to see what she thinks. But I find it very interesting that she didn't think that glasses were nessessary. I asked her if her vision could have improved but she said that alot of kids are farsighted when babies but it goes away, and maybe it just took hers longer b/c of the neuro complications. Who knows? Anyone out there an opthamologist? Then dialated her eyes and so for the whole afternoon she was squinting at everything! Poor baby! I left the house this morning at 7:15 and didn't get home til 4pm! It was a long day w/ the doctor and therapies in two different cities an hr apart! So I dropped about 160 miles today maybe more. BLAH!!!! If anyone out there has a child who has had eye surgery can you please contact me, I would like to ask some questions. Thanks!


Beverly said...

that was a long day for you guys.

Katy said...

Our doc said the same thing about Charlie's vision--that it seems to be delayed due to neuro issues. I don't know anything about the eye surgery, but I know that Holland over at Holland and Eden ( has had it at least twice and it's not a huge deal. Personally, I avoid surgery like the plague, but I'm a chicken like that.