Saturday, October 3, 2009

Alas... more seizures

Well, here we are again.... Friday morning, Faith had another bad seizure. Almost exactly 24 hrs after her last one. This one lasted over 20 minutes. It was very traumatic and we had to use the Valium after she started turning purple around her mouth. It was not her typical style, either, it seemed like several different ones all rolled into one. The weirdest part was towards the end, she raised both hands up in the air and shook them over and over again. So scary. We packed ourselves up as soon as she had stopped seizing and headed the hour and a half to her neuro office. Of course, we had no appointment and her neuro was out of town and it was Friday, which makes for a bad combination of factors and experiences. We had to see a fill in doctor w/ whom we had never met and she and a bunch of others debated about what to do with Faith... The final call was..... Urinalysis, CBC blood panel, CT scan of the brain. So we left the neuro at 10:15 am and didn't leave the hospital until almost 4pm! We got the results of her blood work, normal and the initial results of urinalysis, normal. We are still waiting for the CT scan.
They prescribed Klonopin for her, over the weekend. We wrestled with the decision to give her this medicine b/c it does have an interaction with tegretol and it can cause Central Nervous System Depression in children, especially with developmentally delayed children. After an after hrs call to the on call dr, she convinced us to try it. So we gave it to her last night, and she did sleep and did not have any more seizures but when she woke this morning, she was very unsteady, she kept falling over and she was having trouble doing things like picking up toys. It seemed to wear off after she had been up for a while but we decided against giving it to her during the day, today. I was afraid that she might hurt herself. We also noticed a very distinct personality change with her, today. She is normally happy go lucky, but today we saw her hitting things and crying and fussing and throwing things, too! Very out of character for her!
We have to call the neuro on Monday to see what our reg. dr wants us to do, I am thinking he is going to say EEG and MRI of the brain. Both of which, I DREAD!
We are all exhausted and stressed out, right now. We could use some prayers....

4 comments:

Amy Genn said...

Candace - I'm praying for you all. I can't imagine the stress.
Hugs through the computer...
Amy

Beverly said...

so, so sorry! will be praying for Faith. Noah had an EEG a few years ago and it was not fun. It came back abnormal but we never gave him the meds.

BusyLizzyMom said...

Seizures are horrible, we have been lucky as Elizabeth does not have seizures. I can sympathize with the nasty side effects of meds, I am waiting for Elizabeth to get back to herself as she is a bit of an emotional wreck with her latest medication. Poor kid had an meltdown because it rained today.

Cjengo said...

I so understand, and I am sorry. I am not a fan of Klonnopin, it would just put Jude into a trance. Hang in there