Monday, January 4, 2010

seizures S-U-C-K......

I know that this seems to be a reoccurring theme, in my blogging, lately. Faith came down with something over the weekend, as did I. By this morning, I was phoning the pediatrician, for an appointment. She hardly slept all weekend and she has a terrible cough. No fever, but runny nose and her eyes look terrible. Last night, she woke around 9 pm, after hitting the bed around 5:30 pm. After we got her up and checked her over, no sooner had her head hit the pillow then she started seizing. It was a brief one, for her, only about 45 seconds. Needless to say she spent the rest of the night in our bed. So, we made it out to the doctor- got there early and thankfully were sent back to a room to wait so that we wouldn't expose her to anything else. Now, I came prepared to hit up the doctor for a referral to the epilepsy center in Charleston, with printouts of the program, all the doctors, and a list of recommendations for referring children with epilepsy. Our wonderful doctor, didn't even need to read any of it, Absolutely No Problem, he says! By the way, she has an ear infection (her second one, ever) and something in her chest. Another antibiotic added to the list. So, there I stand at the check out desk, while receptionist is calling MUSC to try to get us in, I just take my eyes off Faith for a moment. Then I look down and she is seizing again! I grab her up and the girl at the front desk sees her and calls back to the back for the doctor. By the time he makes it to us, she is coming around but she had this leg shaking thing on her right leg. She did get better and they didn't have to treat her but I am glad that they were able to see it for themselves. When I got back up to the front, they had wrangled an appointment for one of the specialists on Feb. 19! I was in shock! So quickly! Not saying that the seizure was a good thing, but hey, you never get appointments that quickly with sub specialties! I was a wreck... sobbing and shaking. I had almost all the nurses and office staff crying in the room with me. They gathered around me and prayed for GOD to heal her and give us peace. Such wonderful folks..I love our pediatrician and all his staff! So, now we prepare for our great trip to Charleston to see if they can offer us some hope and help. I would still love to hear from anyone else who has had experience with an epilepsy center!

6 comments:

Amber said...

Wow...I don't even know what to say. I'm sorry...I'm sorry that you and Faith...your family have to go through this. :0(
I can't imagine getting in so quickly!!! That is awesome...I pray that they can offer new hope.

therextras said...

I love your doctor, too.

Completely from my mother-side, I really believe in humidifiers for easing respiratory infections.

Barbara

Katy said...

Hooray for fast(er) service. I've heard that seizures can be triggered by ear infections. Also, by growth spurts. Do hope the Epilepsy clinic has some new ideas for you guys.

Tammy said...

I'm glad you were able to get in quickly. Good luck with finding answers!

Tammy and Parker
www.prayingforparker.com

Cjengo said...

Raising hand, Jude has been to the epilepsy center at Cooks. Also, Jude's seizures pick up when he is coming down with something, eating, or the weather is changing. It's almost becoming a schedule on when I can tell it will storm, or that Jude is getting sick. His seizures are prety controlled with the Depakote, but he still has about 4 a day.

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