I think that I will be doing a LOT of posts about our experiences with Faith's new tool.
Friday, April 30, 2010
I think that I will be doing a LOT of posts about our experiences with Faith's new tool.
Thursday, April 29, 2010
Wednesday, April 28, 2010
(Like when she wakes up in the morning and reaches out to me for a hug and a kiss or when she carries her baby doll around and treats her like a real baby.)
Tuesday, April 27, 2010
Hello everyone! It's Carl... better known as Faith's daddy... or Candace's hubby! I am completely cool being known as with both and proud to both. In fact I was born to be both of those things. I am the sappy daddy sometimes. Everyone in my office knows everything that goes on with Faith, from losing a tooth to any seizures she has to when she does something new. I have about 100 pics of Faith under the glass top of my desk at work and show every new one to everyone when I bring them in. I am not saying this to brag, I just want you guys to know just how much I love my family. The best part of my day is when I come home from work and see those beautiful smiles and hearing Faith yell "DA DA"! The day Faith was born was the scariest, greatest, most amazing day of my life. I love Candace with all of my heart, but that day I really learned what love was. Seeing that little girl that I helped make was unspeakably amazing. The weeks... and years that followed were emotional roller coasters. I was initially SO ANGRY that she had the "problems" she has. I didn't know what the heck C.P. was! Now I have came to realize that she is perfect just the way she is. How cool would it be to wake up every morning completely happy and ready to see what the world will bring you? How many of you can say you do that every day. If you say you do you are lying! ...but she does... and I bet most of your children do, too. She is the best blessing I could ever imagine, and her mom ain't too bad either! Anyways, I hope my first attempt at blogging wasn't too bad. Ya'll have a great day!
Monday, April 26, 2010
He sure was cute and very precocious!
He called me that evening and that day began....
From that day, we were inseparable. We went everywhere together...ball games, concerts, school events, social events and fundraisers. We just clicked from day one! Our birthdays were just six days apart and he even knew my grandmother (who taught at his elementary school)! We went to our junior and senior prom..
(Yes, we were even prom king and queen!) and eventually graduation!
A few months after we met, a friend of Carl's told me that on the first day of school, Carl had seen me and told his friend that he had seen the girl he was going to marry!
Our story had all the classic love story trademarks. It was like we both just knew that we were supposed to be together. We were young but there was just that knowledge from the beginning!I had friends but I really just wanted to be with him, all the time. We like (most) of the same things, we loved to travel, we liked the same kind of music and even the same kind of food!
We weren't wild and crazy kids...we didn't get in trouble. We did things like working at the animal shelter, volunteering for environmental club trash pick up and the like. We just had fun being together.
I always dreamed of having my "prince charming"....the kind of love that people imagine but rarely have...my grandparent's kind of love. I wanted the love where you just knew that your partner was made for you and you for them. After seeing my parent's marriage break up in a nasty divorce, I was NOT going to have that!
I wanted a best friend as well as a husband.
And I got it!
This man was made for me! We still spend all our free time together, enjoy each other's company and know that we have each other.
Posted by Candace at 10:46 PM
This girl is like Rapunzel, her hair grows so fast! She grew over 8 inches in the last 11 months, people!
I told the girl I wanted to be able to french braid it so it needed to be long enough to do that. In the end curls and wet hair are always deceiving and once it was dry it was much shorter than I had hoped for...but....
hair grows back, right?
Note: this was the first time I didn't get to save her hair...it was scattered all over the place and the girl was hurrying us out. :(.....
Saturday, April 24, 2010
We found out that a plain old picnic bench makes a great practice tool for working on standing and sitting without any one's help. (We are seriously considering buying one for the house!)
Edisto Island...Faith scraped most of the skin off her poor knees that day, walking around on that rough sand...
She really liked to hunt for hermit crabs on the beach.
Our favorite place was the waterfront park on Mt. Pleasant. They had an amazing playground with these cool bucket seats that spun around. Faith had so much fun playing on them and poor Daddy got so dizzy!
Wednesday, April 21, 2010
We got out, afterwards and did a little exploring around John's island and our favorite place Rosebank Farms out near Kiawah island. Faith had fun looking at all the beautiful azaleas. We also met a wonderful woman in Mt. Pleasant today who has an 18 yr old daughter who had a stroke at birth. She was lovely and we talked for over an hour! I asked her all kinds of questions and I was thinking about several of our friends out in bloggie land when she told me her daughter suffered with infantile spasms. So she gave me a run down of some of their experiences. It was just one of those "meant to be" moments, when people's paths cross. It was so cool to meet her and we exchanged email address' to keep in touch!
We are heading down to Edisto Island, tomorrow for a little more fun before we have to head back to reality. This last picture is at a local off leash dog park, yesterday. Gandy had fun meeting tons of new dogs but I think Faith had more fun meeting them all!
Monday, April 19, 2010
Friday, April 16, 2010
Wednesday, April 14, 2010
I know I have talked about the unusual connection Faith has with animals. I am a huge animal lover and always prayed my daughter would love them. But she has a very unique effect on most animals she meets. Believe me, it's weird because Faith is rarely gentle with any of them. She pulls their tails, rubs their fur the wrong way, squishes their necks and generally abuses them....in her most loving way! And yet, they are drawn to her.
I sure wish I could explain it.....I know that lots of people say that animals can sense things with people. Who knows? But I choose to believe that GOD has given her a gift....given me a gift...of an answered prayer, small as it may be....
Tuesday, April 13, 2010
(Faith about 6 months old, you can clearly see the stair step on her forehead that revealed craniosynostosis, a cranio-facial defect of the skull)
Things happened, she suffered a stroke and parts of her brain...died.From the start...I blamed myself. It was ALL my fault! It was...really! I....Candace....held responsibility and blame and control over all that happened to my daughter. At least, that's how I felt back then.
It was a huge burden to bear and I suffered with it for a long time. But grief eventually leads to acceptance and a clearer perspective of reality.
So here is what I believe about Faith and what happened to her...
I believe that Faith was meant to be how she is.
I believe that something may have happened during fetal development that caused her brain/skull to develop abnormally.
I also believe that I should have been delivered at a larger hospital with a NICU, a decision that was ultimately my doctor's. And that the nurses and doctors who cared for her should have identified her condition sooner.
I believe that I am just human and ONLY GOD can control what happens to my child. I can only be the best mom I can be. Even if I don't understand. I am not some special, magical person who can control, fix or change the outcome of a stroke.
I believe that GOD gave us Faith, to show us what true love, sacrifice, commitment and faith is all about.
I also believe that it is absolutely NORMAL for a parent to have those emotions, it's sort of a rite of passage, on that road of grief.
I believe that although it is not easy, although NO parent wants something to happen to their child, although it can be heartbreaking to witness....Faith is MY miracle! She would not be Faith if she were any other way.
Miracles do NOT always arrive with a beam of bright light, they do not always come dancing down the road and tap on your shoulder and say "Hi, I am your miracle". Often they sneak up on you and grab you by your shoe laces and trip you. And at first they can feel like a slap in the face and you want that "miracle" to go back where it came from. But if you give it time and try to learn how to cope....your miracle will flower into this beautiful example of God's commitment and love to His children.
I know that what happened to Faith was not my fault, it wasn't any one's FAULT. Some mistakes were made, things could have been done to catch her stroke quicker. But in the end, she is perfect just the way she is. If I can say my daughter understands love and happiness and compassion...what more could a mother ask for?
(Faith at 11 months old, after her craniotomy. I have to laugh at her hand in this picture!)